Blockchain and Smart Contract for Trusted Decentralized Digital Genomics
Résumé
Genomics data enables benefits in understanding human health and potential diseases. Besides being very useful in various medical fields, they encounter considerable issues regarding the usability of genomic data by unauthorized third parties. The unauthorized use or misuse of genomics data inflicts privacy and ethical problems. Several regulatory frameworks aim to regulate the use of genomic data, and parties involved and working with such data should comply with the regulatory framework. Ensuring compliance aspects when such data are shared imposes a clear challenge. The technologies used for processing, sharing, and maintaining genomic information do not have the capability to formally and empirically ensure that these data are used in compliance with the regulatory framework and consented to as determined by the data owner (based on the regulatory framework). We propose new technologies, such as blockchain and smart contracts, for improving information sharing in the genomic ecosystem.
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